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@CDKL5USA is honored to share a brave guest blog from our partner, @YssaDeWoody of @Ring14USA.

She generously shares her family's experience to help others trying to protect medically fragile children during the #COVID19 pandemic.

https://www.cdkl5.com/blog/24-hours-in-the-covid-19-ward-with-marie/

We are excited to launch a new video awareness initiative called #CDKL5RawTalk

What is "Raw Talk"?
CDKL5 Canada is pleased to launch a new awareness initiative called CDKL5 “Raw Talk”. Raw Talk videos aim to… https://www.instagram.com/p/B-kqLlMg7Zq/?igshid=tsi1b686mpb9

A huge issue for our children with #IEPs due to the #CoronavirusPandemic. It's a trying time and so many of our families and children with #SpecialNeeds are struggling. https://www.koco.com/article/parent-concerned-by-what-distance-learning-will-look-like-for-students-with-special-needs/32011318

Preparing for Hospitalization of a Medically Complex Loved One During Covid-19 Pandemic
https://complexchild.org/articles/covid/preparing-hospitalization/
@ComplexChildMag #CDKL5 #raredisease

“There are no currently approved treatments for #RefractoryStatusEpilepticus,” explains CEO Dr. Scott Braunstein.

Discover how we are creating a new mechanism of action for #RSE patients here: http://www.marinuspharma.com/se

Exciting Announcement as Ulysses Neuroscience Ltd and Atuka enter into Co-Marketing Agreement and Combine Expertise to Advance Translational Research in Parkinson’s Disease.

Download Press Release here 👉 https://zurl.co/CYcd

#neuroscience #partnership #research #Parkinsons

"Independent bookstores are fighting back, not just with expertly curated tables or eloquent shelf talkers, but with Amazon’s own tactics. And with http://Bookshop.org, they just might win." Thanks to Alex Lauer and @InsideHook for this!

https://www.insidehook.com/article/bookshop-independent-bookstores-amazon

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