@CDKL5USA is honored to share a brave guest blog from our partner, @YssaDeWoody of @Ring14USA.
She generously shares her family's experience to help others trying to protect medically fragile children during the #COVID19 pandemic.
We are excited to launch a new video awareness initiative called #CDKL5RawTalk
What is "Raw Talk"?
CDKL5 Canada is pleased to launch a new awareness initiative called CDKL5 “Raw Talk”. Raw Talk videos aim to… https://www.instagram.com/p/B-kqLlMg7Zq/?igshid=tsi1b686mpb9
@medicalaxioms Roth score: patients take a deep breath followed by counting out loud from 1 to 30 in their native language, in a single breath, as rapidly as possible. result includes 2 measurements: (1) time elapsed between counting from 1 to 30 in 1 breath, or until took another breath; and
Gracias @ALCEEpilepsia por nominarnos. Nuestra palabra es ESPERANZA.
Ahora les toca escoger su palabra bonita a @apoyodravet @FundacionDravet @CDKL5USA @ITA_CDKL5_IVLC @CDKL5UK
@vivirepilepsia @RaquelCon3ras @Angelino_ruiz @ouro_pablo @virzumarraga @Gemma_UCB @Atleti @fedeepilepsia @ApiceEpilepsia @AnpeEpilepsia @EpilepsiaEspana Elige una palabra bonita y escoge a otras 5 cuentas para animarlas a que hagan lo mismo. La nuestra es INCLUSIÓN
@cdkl5spain @AVDiabetes @COCEMFEValencia @CERMICV @FEDER_ONG
A huge issue for our children with #IEPs due to the #CoronavirusPandemic. It's a trying time and so many of our families and children with #SpecialNeeds are struggling. https://www.koco.com/article/parent-concerned-by-what-distance-learning-will-look-like-for-students-with-special-needs/32011318
Preparing for Hospitalization of a Medically Complex Loved One During Covid-19 Pandemic
@ComplexChildMag #CDKL5 #raredisease
“There are no currently approved treatments for #RefractoryStatusEpilepticus,” explains CEO Dr. Scott Braunstein.
Discover how we are creating a new mechanism of action for #RSE patients here: http://www.marinuspharma.com/se
Exciting Announcement as Ulysses Neuroscience Ltd and Atuka enter into Co-Marketing Agreement and Combine Expertise to Advance Translational Research in Parkinson’s Disease.
Download Press Release here 👉 https://zurl.co/CYcd
#neuroscience #partnership #research #Parkinsons
"Independent bookstores are fighting back, not just with expertly curated tables or eloquent shelf talkers, but with Amazon’s own tactics. And with http://Bookshop.org, they just might win." Thanks to Alex Lauer and @InsideHook for this!
Well said Natalie 💚
Thank you @CDKL5Cad for sharing your story with us! Speak up and help save a life today. Join Natalie in the #FightforOurLives at http://fightforourlives.ca https://twitter.com/fight_4_lives/status/1245005936143499265