About us

The association was founded by a group of parents who, in the misfortune of their children’s illness, have had the strength to unite and understand the importance of fundraising to support research.
The results obtained with our initiatives make us especially proud of those who work to help us. These results make us understand that many people have fully understood our intent and the kind of people we are. This thing for us is a boast but above all it’s a responsibility that we happily assume.
Transparency is our workhorse.

The cure will come only thanks to the research that, as we have learned early, has very high costs.
Our main purpose is to find funds to support research.
In addition to dedicating ourselves to fundraising, we try to create a network between website, youtube channel, Facebook, Twitter and newsletter that will involve all those who have approached our cause. Above all, we try to support families struggling at the forefront of this disease